A Chinese Pharmacist Found Out He Had Cancer. Then He Vanished.

Aug 20, 2018 · 48 comments
Oliver (China)
This is indeed a touching and heartbreaking story. However, I can’t help to wonder the details that are left out in this article. In the place where I live, Shanghai, my Medicare covered 80% of cost if I get cancer or any other serious disease. I also have a 2000¥ (about 292$) personal medical aid that I can resort to if I desire any foreign or private treatment that’s outside the scope of my coverage. Did the author initiate any sort of inquiry in the local Medicare department? I’m aware that the National Medicare will cover more cost if your income is lower, and more aid will be granted. In some area Medicare will cover up to 95% of medical cost, combined with the aid, a patient should only expect to pay less than 3% of total cost. I assume in this case the Medicare did cover a substantial amount of cost, the family just can’t afford the rest. The problem here, as much as the author wants it to be shown, has nothing to do with Medicare. How will a country navigate itself when it just experienced the fastest growth the world has ever seen, and still growing? How can a government balance the wealthy and the poor when tens of millions of people are lifted from poverty? How will the government takes care 1.4 billion people across this vast territory? There will always be people like the Tang family who need help. We can only help if we know the real problem. It’s still poverty, not Medicare.
EG (New Mexico, USA)
This is a heart-rending story. When one reads it in juxtaposition with the January 31, 2018, piece on the involvement of tech giants in the healthcare fields in China, it is positively ghastly. Alibaba, and others, use AI to deliver increasing numbers of serious diagnoses to the Chinese, obviating some of the problems created by an acute shortage of physicians. But what good is a cancer diagnosis at the earliest stages when, as here, no treatment is available for economic or other practical reasons? I shudder to think of the same "system" being instituted in the US, especially if done at the behest of the present administration. Diagnosis without access to care/treatment is a cruelty that only dictators and oligarchs would totally fail to understand.
Rouanne Garcia (Los Angeles, CA)
Is there some sort of GoFundMe account I can contribute to? Heartbreaking story, would love to help the parents financially if possible.
Michael W. Espy (Flint, MI)
This man-made World is a cold place. Keep your loved one's close. Power and Profit reign supreme.
Janice Badger Nelson (Park City, UT from Boston )
NY Times~~please keep updating this story. It is just heartbreaking; you can feel the parents anguish through the words. I know the son thought he was doing the right thing. Being in the healthcare system, he has probably seen the worst. He thought he was protecting loved ones, but he has broken them instead. He never realized the impact it would have on his parents who love him. It is worse than any debt they would have incurred. Their loss is now compounded. Just awful. I pray they find him.
Rebecca (China)
I agreed with you in some part . I think the missing man really scared about that if he died, his parents have no ways to earn money. The retiree in village have no retirement insurance,or that much lower than the retiree in city .
Paul (Brooklyn)
Gee, I thought the USA was the only industrialized country on earth to have a de facto criminal health care policy. Looks like I was wrong.
G.E.R.R.Y. (Canada)
@Paul The crucial difference is that the system in the USA is for-profit sickcare and medical neglect of the poor is DELIBERATE.
XLCR (East and West)
@G.E.R.R.Y. Oh, it's not so different in many part of China. The irony - and tragedy - is that the countries whose healthcare systems most resemble each other in practice are China and the US, despite the fact that both constantly point fingers at each other. The Chinese healthcare system is very much profit-driven, despite it's superficially socialized veneer. The whole system is chaotic, unfair, and really uneven. Some areas have excellent, fair, and equitable access. Some are total shams and completely commercial in their actual practice. Hospitals routinely deny treatment based on ability to pay, give preferential treatment to those who hand over cash directly to the doctors or senior staff, and even punish doctors for taking on sympathetic cases, including docking their pay to cover the costs. It's also not unheard of for people to pay rough characters to intimidate doctors into reducing bills.
Paul (Brooklyn)
@G.E.R.R.Y.- well Gerry we are splitting hair, both systems are criminal in China and the USA. If you read XLCR below they can shed more light on the subject. Actually in the USA the very rich and the very poor get good health care and/or can afford it. It is the great swarth of people in between that are paying a fortune for it and a sizable number (pre ACA) who are shut out completely.
Unconvinced (StateOfDenial)
Sounds like a healthcare approach the GOP would embrace: make yourself disappear before burdening anyone.
TAR (Houston, Texas)
Aside from the telling story about healthcare, this is also a story about values. This is a culture that still values "filial piety" as it is referred to. A recent study in the US found that young people valued action on behalf of themselves and their own well being more highly than action on behalf of others and also expected that their parents would agree. (A partner survey of the parents indicated they valued action on behalf of others more highly.) I can't imagine this me-first culture producing people who would make such a decision.
Jonas Goh (Seoul South korea)
This story tears apart my heart. When I grew up in the 1980s Korea had useless health insurance covering about nothing when big diseases such as cancer hit patients. My aunt had only child who burnt his body badly. She had to sell her own house to raise money for his treatment. She always said to me at the time there were so many medical treatments not covered by health insurance. In the 1980 Korea’s health insurance could be helpful when you visited hospital for cold. However it was absolutely useless for cancel treatment. Now things have changed, we have National Health Insurance which covers any major treatments. When my mother suffer heart disease, I agreed to send her a University hospital and I paid all the money. The cost was about tens of thousands dollars for major hear surgery. But I paid just several thousands dollars and the rest was covered by National Health Insurance. My mother is still with me today. National health insurance can be a great boon for many ordinary people. I hope Chinese people also choose a wise policy.
XLCR (East and West)
@Jonas Goh I am sorry for your family's suffering, and I am glad to hear that your mother is alive and well today. Korea today has an excellent medical system, and a good model for other nations. Unfortunately, for your last sentence, the problem is Chinese people cannot choose at all. With no democratic process, it is necessary to accept whatever the Central Committee (Chinese Communist Party government body) says people will have.
ABC (Flushing)
I went to Union Medical school Hospital, a Beijing hospital built over 100 years ago not by a Chinese but rather as a gift from a foreigner, John D, Rockefeller, as China’s first modern hospital. As I entered, on the floor were roosters and people sitting with their pets, dogs, cats, small pigs. I was told to go around to the foreigner side, separate from the clinic that served Chinese. In the doctor’s room there were none of the things I experienced while working in my father’s medical practice … the smell of alcohol, numerous medical tools, and medical books. This worried me. I had an ingrown toenail, and the doctor said he would cut into my toe and remove the nail. I asked him in Chinese, “um, have you ever done this before?” He jumped out of his chair and paced back and forth, shouting that I was nothing but a foreigner, bred from an inferior race, what am I even doing in China, and who am I to question him? I thanked him for his time, crossed the street to the pharmacy and solved my own problem by putting iodine in the nail groove every day for two weeks.
JJ (NYC)
@ABC This does not sound like a real story. Beijing is a modern city like New York, city people don't generally have pigs and chickens and they don't take them with them when they go to the hospital. I have been to hospitals in Beijing and they are normal and modern.
Amy Haible (Harpswell, Maine)
@JJ I too, have been to Beijing and visited a hospital very similar to the one ABC describes. There were long lines, the floors were filthy, the upstairs floors had used needles lying everywhere. We need to care for everyone, regardless of ability to pay. That goes for the U.S. too.
Real Teruchan (Hong Kong)
@ABC I have trouble believing this story as well. I lied in China almost ten years. If you had said it was a province just outside Beijing it would seem believable. I have certainly been to hospitals just as you described, but never in Beijing, Shanghai, Shenzhen, Guangzhou or any modern city.
Keely (NJ)
The police tell this poor couple they cannot help to track their sons phone because of "privacy reasons" in a communist country where the State watches literally everyone? Give me a break! Many Chinese are simply jaded- what is one missing or dead Chinese person in a country with a BILLION of them? This is terrible, Bernie Sanders has finally found a country that has a healthcare system more cruel and heartless than America's. Congrats.
Cloudy (San Francisco)
Oh? But isn't China a Communist society? And haven't we all been told endlessly that one of the advantages of Communism is that it provides free medical care to all? There seems to be a slight disconnect here.
md green (Topanga, Ca.)
@Cloudy No...China is decidedly not a communist country. Wherever did you get that idea? China, traditionally had been a socialist state, but in past two decades, China has embraced a more capitalist approach. Due to this, China, has grown into a massive economy state.
Zejee (Bronx)
Nobody says that. Democratic Socialism is not Communism. You have to listen more carefully.
Jimmy (Portland, Oregon)
China most decidedly is a Communist country, by the regime's own description of the country. Just because their system is abjectly corrupt (like all Communist countries) and has parts of their system that impersonates capitalism doesn't mean it's actually a capitalist system. Try education, reading, history.
Mike (USA)
Health insurance thats only good as long as you don't get sick
tiddle (nyc)
Such a sad story. The ironies abound - (a) Whatever happens to the "socialist" side of Chinese government or ideology of the communist party. There is nothing about "share the wealth" (as most Americans hate communism for), it's all about bootstrap, ie. if you can make it, that's great, but if you don't, don't make a big fuss and just go quietly. (b) For all the glory of One Belt, One Road. China has much wealth to buy influence around the world, but it's all on the backs of its people (when they don't even realize it). (c) For all the outrage that people feel about it, particularly those in the West, of how this young man and his poor family could not have afforded any treatment, are our healthcare system really THAT much more superior than the chinese? We might still pride ourselves with, God bless us, Medicare/Medicaid but it's a ticking time bomb when the money has to come from somewhere. Is it really that much of a rarity that we hear of financial ruins as a result of health issues/emergencies? I don't think so. (d) The saddest part of the story, is a family that has no one to turn to. The son has been a dutiful child, did what was asked of him, and he did well by most account. Whether he's a pharmacist or a doctor, it won't matter in the end. He's an only child and he's dying (or might have been dead). The parents will die destitute with no one to care for them. And they won't even warrant a footnote in the rush to economic prosperity.
G.E.R.R.Y. (Canada)
@tiddle Your American for-profit "sickcare" system leaves MANY millions lacking healthcare just as much as that poor family does; however, the USA can still find BILLIONS for additional military funding that wasn't even requested! Even more disgraceful than the underfunding of the Chinese system!
Zareen (Earth)
What a tragic story. My heart breaks for these Chinese parents and their beloved son. Access to healthcare should be universal human right.
wsmrer (chengbu)
@Zareen China has a reason why health insurance is limited in coverage it still has 40% of its population hovering near the poverty level and funds are not available to extent coverage for that mass. The goal is set to keep extending coverage and hospitals are being extended and improved day by day and coverage is being extended for those eligible. The son is being very traditional in fading away from such a poor family
Beau (Canada)
Much has been made of the untold billions China is able to spend on its projects, such as raising islands from the ocean. They could probably re-prioritize and really help a lot more people.
wsmrer (chengbu)
@Beau A like argument can be made for worldwide US military spending that is a large multiple of any country's military budget, but you do not hear that argument being made in Congress.
Xoxarle (Tampa)
Expensive insurance that doesn’t provide much coverage. Has a familiar ring to it.
wsmrer (chengbu)
@Xoxarle Article was not describing that problem, familiar as it is, but the lack of cancer coverage except it higher priced policies and other surgical and technological items e.g. chemotherapy. About 95 percent of people now have some kind of basic insurance coverage, encouraging them to see a doctor and universal coverage is planned by 2020, but terror sets in if illness serious, as son discovered. Have seen people with signs begging before a hospital entrance but few coins in the cup.
Jason Tan (Singapore)
This is heartbreaking. But all the more concerning is the pervasiveness of this rather extreme interpretation of filial piety especially among the Asian countries. Perhaps I’m being too cynical but I really hope anyone launching crowd-funding campaigns for this couple will actually wire the money to them. For what it’s worth China doesn’t appear to be on gofundme ‘s list of supported countries.
Eric (China)
I read this article on my way to work, and I am move so much that I am full of tears, because I know if I or any of my family had cancer, we would face the same situation as the Tangs. My parents worked their whole life for our family, so that my sister and I can live a better life. I am from a rural area of Southeast China and now working in Beijing as a law clerk. Several years ago my uncle got lung cancer and he just waited for his final moment on his bed. Now my grandma got tumor and waiting for the final test results. My aunt told me that grandma decided not to take medications because the family are now financially burdened by the my house loan. Starting to work now. Prayers for the Tangs.
John (Beijing)
@Eric This is not just about personal pain or financial burden of a family. It's more related to a lack of sufficient insurance system or social security network in China, especially for those poor or underprivileged. If the government have done more to protect the well being of its citizens, such tragedy will not repeat.
godfree (california)
China has been struggling to improve rural health care since the Cultural Revolution made it a priority. Mao's comments on the situation at the time are amusing and accurate, “Tell the Ministry of Public Health that it only works for fifteen percent of the total population and that fifteen percent is mainly composed of urban gentlemen while the broad masses of the peasants get no medical treatment: they don't have any doctors and they don't have any medicine. The Ministry is not a Ministry of Public Health for the people, so why not change its name to the Ministry of Urban Health, of Gentlemen's Health, or even to the Ministry of Urban Gentlemen's Health? "The methods of medical examination and treatment currently used by hospitals are not at all appropriate for the countryside and the way doctors are trained benefit the cities exclusively, though five hundred million of us are peasants. Medical education must be reformed. It will be enough to give three years’ training to graduates from higher primary schools who can then study and raise their proficiency through practice. If such barefoot doctors are sent to the countryside–even if they haven't much talent–they will be better than the current quacks and witch doctors and the villagers can afford to keep them”. The overall health policy is sound, however: Chinese life expectancy will surpass ours in 2021.
Dan (California)
From what I've read, the authorities in China don't give a hoot about the privacy rights of anyone they think is expressing views that are contrary to the views of the ruling Communist Party. So his parents should report their son to be a dissident, agitator, traitor, American spy, protest leader, or neo-revolutionary, and voila, he'll be found right away.
godfree (california)
@DanAu contraire, Dan. Harvard’s Gary King found, “Contrary to much research and commentary, the purpose of the censorship program is not to suppress criticism of the State or the Communist Party. Indeed, despite widespread censorship of social critics, we find that when Chinese people write scathing criticisms of their government and its leaders the probability that their post will be censored does not increase. Instead, censored tweets were equally likely to be against the state, for the state, irrelevant, or factual reports about events. Negative, even vitriolic criticism of the state, its leaders and its policies are not more likely to be censored”.
ENR (Seattle)
My son was diagnosed with BPDCN, a rare form of leukemia. Since it is so rare there are very few studies of it in children. But I did come across a paper regarding a child in China, which basically said that treatment was effective, but eventually the parents could not afford the cost of medicine and their daughter died. I know cancer medicine and treatment is expensive. I am very fortunate my wife has good insurance. But I know many other parents rely on GofundMe, donors, and family and friends even in the US for assistance. In this regard the US isn’t far from China.
DAK (CA)
I am a physician and was touring China in October 2012. While at the Wuhan (population 10 million) airport, I felt faint and broke out in a cold sweat. The airport Medic sent me via ambulance to Wuhan University Hospital ER. Our tour guide stayed with me to translate and said I was at the best hospital in Wuhan getting VIP care as a foreign visitor. I was on a gurney next to other Chinese patients and observed their medical care. Families arrived at the ER by private car or taxi, not by ambulance and literally dragged or carried their sick family member from the entrance to the registration desk. They had wads of paper currency in their hands because the ER would not do anything without prepayment. None had insurance. I had shaking chills, cramping, nausea, and vomiting. I had an IV at an inadequate flow rate, a brief exam, blood drawn, and an EKG. I reviewed the test results. The staff did not have a diagnosis. It became clear as my symptoms progressed that I had an bacterial or viral gastroenteritis. When they wanted to do a head CT scan to rule out brain tumor, I refused and told our tour guide to get me out of the ER immediately. I went to a hotel, stayed overnight, and self medicated with the travel medications that I had in my luggage. After a rough night with trips to and from the bathroom, I was fit enough to fly to Shanghai to catch up with the tour. My Chinese companions on adjacent gurneys weren't so lucky. I hope they survived the Chinese Healthcare System.
cykler (Chicago suburb)
Can we open a GoFundMe account for these folks?
Tom (Florida)
If u find out how and we can be sure the parents get the money...I'll be happy to contribute
Phil (Eastford,CT)
My thoughts exactly. Probably has to be someone in China who sets it up, but do it and add it to the comments here. Thank you.
XLCR (East and West)
@cykler I want this too, but it's probably not possible. RMB is not a freely convertible currency and China has strict controls on money coming in and out (officially, at least...) . GoFundMe cannot be used in China, only Chinese government approved services like Alipay. You need to have a Chinese account to use these, and it's difficult to accept payment from outside China. To fund this family, you would need to have Chinese in the US and China cooperating. If a large collection was done by many people, it could also attract some negative attentions and possibly cause even more problems for this man's family. Remember, nothing is private in China and the officials do not like things that organize people in ways that might show problems.
Andrew Popper (Stony Brook NY)
The "Winnie The Pooh" dictatorship has $BILLIONS to spend on fake islands, aircraft carriers and thousands of missiles to bully the free Chinese on Taiwan, while millions of gifted Chinese children suffer from poor quality education in inland regions. The general population eating toxic food, breathing polluted air certainly would not dare swim in China's polluted rivers and when they develop terrible diseases as a result of government neglect and negligence can expect equally substandard healthcare UNLESS they are part of the Communist Party elite.
cykler (Chicago suburb)
@Andrew Popper Eerily similar to the USA in which i live.
godfree (california)
@Andrew PopperThe stats say otherwise, Andrew. Chinese life expectancy will overtake America's in 2021, thanks to the government's prioritizing health promotion rather than pouring resources into pathology remediation, as we do.
BenR (Wisconsin)
But if Chinese factories weren't allowed to pollute the environment and abuse their employees then American consumers would have to pay more.