The World’s Modern-Day Lepers: Women With Fistulas

Mar 20, 2016 · 135 comments
Noami (Swansea)
Thank you for highlighting this, so important to have articles like these that raise awareness and hopefully more funding for projects and schemes that help to heal fistula will follow.
Sk (Summit)
I feel for these women. Suffering from urinary incontence after a prolonged labor had left me scared and scarred. It dehumanizes you and you feel ashamed everyday
Kari (LA)
We don't even have equality for women in America. I doubt it will happen overseas in countries where the men hate women even more than American men.
Gina (Metro Detroit)
NYT - please do an article about vasectomies....
Ingrid Andersson (Madison, WI)
I have followed Nick Kristof's work with admiration and gratitude over the years. I am a nurse-midwife who has worked in Kenya, where fistulas occur. So it mystifies me now, why most underlying causes for fistulas are left out of this report. The cause is almost never simple childbirth itself -- from which we need expensive modern technology to save us with more cutting! Underlying causes include childbirth to girls, at ages of 11, 12, 13, before pelvic structures are mature. Also, multiple childbirths, as well as childbirth after female genital mutilation, which can severely impair or weaken pelvic structures. This is all on top of women's place in these same societies as beasts of burden, as procurers and bearers of water, for example, in addition to all the other loads and miles they walk each day. Tourists and photographers impressed by seemingly gravity-defying loads women carry on their heads, don't ask these women about their backs, hemorrhoids or pelvic walls, ruined through years of loads both on heads and in bellies. Nick Kristof has done so much vital work around all these issues that it mystifies me as to why they are left out here.
Ann S. (bloomington)
The 2007 film documentary, "A Walk to Beautiful" gives a good background story to the efforts of the Drs. Hamlin to help fistula patients recover from their labor injuries caused by pelvis's being too tiny to deliver a live baby 2nd degree to the prevalent custom of child marriages in many African countries.
Martha Gross (Portland OR)
Mr. Kristof, thank you for bringing this to light. I made a contribution to the Fistula Foundation today. I hope that your reporting will help generate the much needed resources to combat this condition.
Terra (Congervile)
Thanks for writing about fistula, and showing that it is both preventable and treatable. This is what The Fistula Foundation and others are working to achieve. They deserve our support, as do other organizations working to attack the root causes of fistula: poverty and women/girls without educational, financial, or social options.
ak (wisconsin)
contraception is the best answer. the benefits will reverberate locally around the world.
Dave (Chicago)
Very sad in this day an age; we need people to step up to the plate and eradicate this illness; if we look back in time review what Father Damien did in the 20's ; in Hawaii and how his impact helped Lepers. Dave Chicago
jhw4 (ithaca, New York)
Showcasing a problem mentioned first in HALF THE SKY. How many more hospitals needed< Nick, and where?What will reduce the incidence of fistulas?
BC (greensboro VT)
When Hillary Clinton as a candidate tries to speak to women's issues here or abroad, there's an outpouring of comments that she's being sexist. May of Sanders supporters have commented in these comments that we are "post gender" and that we don't need to focus on gender when making our choices for president. We should just "pick the best candidate."

Sorry everyone. For addressing these issues and others like it (right here in the USA) the best candidate IS a woman and a highly qualified one at that.
Si senor (U.S.A)
I as a middle age man suffered from two fistulas, one at my rectum and the other between my scrotum. I have Crohn's disease and this is where my problems came from. I had them cut, packed and stitched. thankfully I haven't had any problems since 2007. I feel for these women.
Apowell232 (Great Lakes)
I've read much history and literature over my lifetime in which childbirth results in death for the mother and/or infant or the sterility of the mother. There was never any mention of fistulas or incontinence. Can you name any works of history or literature that dead with this?
CP (MA)
Read the novel by Abraham Verghese entitled "Cutting for Stone".
Sazerac (New Orleans)
Thank you Mr. Kristof. You highlight another horrible outcome for women which can easily be alleviated through education and birth control. Well done.

It was only two days ago that a well written and well reasoned article concerned with birth control appeared in the NYT: “Obamacare’s Birth-Control ‘Exemption’ Still Tramples on Rights” written by Constance Veit, the director of vocations for the Little Sisters of the Poor.

Sister Veit built a case to diminish the reach of Obamacare her realm for the reason that Catholics are opposed to birth control on the grounds of religious belief.

What chance do women (anywhere on our planet) have when so much of the world’s population remains superstitious? Animists, Hindi, Moslems, Protestants/Mormons/Evangelicals, Catholics, Jews - There are millions of people in all the foregoing that practice discrimination against the rights of women within their group based upon a religious belief – superstition.

Honor killings, genital mutilation, forced pregnancy and now to top it all, we learn that ISIS forces birth control on their female sex slaves.

America can stand tall. We no longer burn witches. Superstition is a thing of the past. Or is it?
Joel Parkes (Los Angeles, CA)
Poverty and lack of education, combined with almost Biblical misogyny, have placed millions of women around the world in a living hell, while here in the United States millions tune into reality tv shows and mind-numbing entertainments like "The Voice." Most of our citizens won't read this column, and if the 7th-graders I teach are any indication, they could neither spell nor define "fistula".

While Hillary Clinton and Michelle Obama have brought women's issues somewhat to the forefront of our politics, I have a vivid memory of Congressional Republicans repeatedly defeating foreign policy initiatives that allowed for contraception and/or abortion, both of which would be necessary to combat the horrors portrayed in this column.

This column spotlights both how lucky those of us who live in developed nations are, and how much more we have to do to help our fellows in less fortunate circumstances.
NYHUGUENOT (Charlotte, NC)
They haven't disappeared in the West. I recently watched a video from Britain with two men who had them on their back and were feeding off their rectal canals. Both men suffered for about 6 years with NHS giving them antibiotics. They were finally picked up by a television show, Embarrassing Bodies and received proper treatment which was surgery to scrape out the necrotic tissue and replace it with skin grafts. Like these women they had a horrid odor about them and needed someone to pack their wounds daily. The wounds were about the size of a fist.
I was very disappointed in the NHS. I would have expected better of it.
Concerned Citizen (Anywheresville)
It is deeply ironic that in the same issue of this publication is an article about abortion clinics in Texas -- and "examples", the article (heavily pro-abortion, without providing opposition feedback or opinion) uses as examples several Texas women wanting abortions -- without discussing for one second why these women (who were not raped -- one was married -- most already had children -- none were underage) did not use birth control.

Birth control is FREE -- 100% free -- under Obamacare. Even before that, the Pill was $9 a pack at Walmart, and many drugstores, convenience stores, supermarkets, even gas stations sold condoms. A condom plus contraceptive gel or foam is as effective as the Pill -- and doesn't require a doctor's prescription or any waiting period. A condom costs about 50 cents -- less if you buy them in big packs.

An early abortion costs roughly $700. Which is the cost of an IUD. DO THE MATH. The IUD offers protection for up to 10 years, and is nearly 100% effective.

Yet these women are CHOOSING not to use contraception. That is the real problem. Women who have access to the best health care in the world, BC at every imaginable store, Medicaid, Obamacare -- and they still don't use it. What hope is there for the poor women of the world, who face the horror of fistulas?
Gina (Metro Detroit)
A few points:

1. birth control isn't 100% effective.
2. the pill - you can only get via a doctor - by prescription
3. the pill (and possibly other methods) has (or can have) adverse effects - like cancer
4. the pill is NOT FREE - there's is still a cost

Why is all this only a woman's responsibility?

To the men who either don't want children, or to take responsibility for children, etc..... you know that vasectomies are relatively easy, relative cheap, have few side effects, and are usually fully reversible?

Why don't you take responsibility for your biology?
Diane Spear (NYC)
You're making an assumption that women who get pregnant don't use birth control. Many forms of birth control fail: condoms sometimes break, the pill can be used faithfully and still fail (a friend got pregnant twice while on the pill), women can get pregnant with an IUD in place, ditto for everything else. It's important for a woman to have a choice as to whether or not she has a child.
kms (central california)
Some US women don't have $700. Some used contraception and it failed. Some are teenagers. Some were raped, some women's husband do not let them use birth control, some men won't use condoms, there are a thousand reasons why your blame-the-victim response is, at the very best, misinformed. And even if it is wasn't, what business is it of yours whether women choose to abort a pregnancy?
James (Flagstaff)
Boy, Mr. Kristof's stories (and his heroic reporting) really put the "angry US voter" phenomenon and our obsession with the Trump carnival into some perspective. It's about time we stopped focusing on our navels and all started getting "angry", or, better, "motivated" about the truly forgotten victims and sufferers in our global society.
David Rahn (Michigan)
Thank you Nick for another column that is tough to read. Women's health and safety really needs to be our 21st century global concern. And as someone else has noted you are a social worker/journalist.
Leslie (Michigan)
I can't believe I'm 59 years old, had my son and have never heard of this. I never had any conversation with a doctor or friends. I'm glad that there is surgery because I can't imagine living like that.
gaynor powell (north dakota)
Fistulas are no longer common in teh West as pointed out in this well-written piece, but they do exist elsewhere and are horrific not just physically, but emotionally. The only other thing I can think of that makes me feel as queasy, is Female Genital Mutilation. Despite huge strides made by women in the past 50 years, women globally are stuck in teh Dark Ages still.
deb (indiana)
While I am not against birth control, that seems to be the only answer anyone is offering. There needs to be a way for women to give birth safely.
Winthrop (I'm over here)
A fistula is a disorder that afflicts men, women and animals, in several different places on the body.
The way the term is applied in this article seems myopic.
Abadi Berhane (Shire)
Most of the time, women pretend, it is only the issue for women, but it is an important issue of both men and women, giving the responsibility and freedom, they try to discuss a closed meeting only females but why men, we men also have the responsibility to fight against women harassments and rape. Our sisters or mothers ..... it is very critical and it needs political commitment to create awareness and put strategic plans. Today is 21st century,
gdanswan (Annapolis, MD)
Keep at it, Nick, your columns are extremely helpful and I pray that some good comes from them. Especially Southern Sudan.
CRO (Dark Side of the Moon)
A fistua is something ANYONE can have, if the circumstances lead to it. I had one growing in the liver area, the result of a biopsy take 20 years earluer. So, it's not the ONLY place ANYONE could develop one. Low informed writer could have taken the time to explain "fistula" better. SMH.
Bobby Mossman (Albany, NY)
In past years, these are the people our military personnel fought and died for. To give them the same rights Humans have so they are not treated like animals. in recent years though it seems we have forgotten that the reason we go to these other countries with our military is to liberate people like these women and give them a chance at freedom and living a decent life. It is sad America has got so self-centered now that all we worry about is free college and healthcare so we don't need to work a 40 hour week anymore while attending school, so we don't have huge bills we can't pay when we graduate. People think the worst thing that can happen to them is to have to work while they go to school while people in other countries suffer like this. THAT is what is wrong with America today.
Iver Thompson (Pasadena, CA)
It's tragic that most of the ill side-effects that occur as a result of sex between a woman and a man have to be borne by the woman. If the world were fair, the opposite would be the case. Perhaps it's time for we men to be sterilized . . . just like the males of other predatory creatures are to keep their species under control.
MrsEichner (<br/>)
The fact that these women are shamed into near death is appalling. Shame is a useless and often dangerous emotion. It heals nothing, it allows wounds to fester. No woman should be shamed over a medical condition. I hope their treatment includes attention to the emotional suffering they have endured.
gail (Connecticut Valley)
Anyone interested in this issue, and a fan of great writing, should read "Cutting for Stone," by Abraham Verghese, in which a young, doctor is obsessed with the problem of fistulas in young Ethiopian women. This is only one of the interesting aspects of this wonderful novel, but it is an important one.
Krn (Philly)
Aren't most fistulas caused by rape? How about "educating" the rapists?
AyCaray (Utah)
In simple language, this issue and solution should appeared on all public transportation and gathering places where masses can read about it or see it displayed in a manner that women and men can recognize it and do something about it. The condition is common and has a cure. Inform and educate. Let us not wait for politicians to do OUR job. If funds are needed, then support those world organizations that dedicate themselves to assist the poor. Thank you Kristof for doing your job.
itsmildeyes (Philadelphia)
So, a lack of sexual/reproductive education, no knowledge of birth control, no institutionalized social safety structure for poor women, ostracization of affected women, religious endorsement of punishment/curse dogma.

Two thoughts:
1. Sounds like the Republican Party platform.
2. Ethiopia needs a Planned Parenthood presence.

(I do sincerely wish these suffering women and the fistula organizations mentioned well. My snark is certainly not directed at them.)
Elizabeth Fillo (Princeton, NJ)
Bravo Nicholas for tackling the difficult subjects you write about. You are a brave, courageous and passionate human being whom I admire greatly. And this topic effecting women is one of the most difficult. That you would write about it in this way speaks volumes about the necessity of listening to you when you speak of these sensitive subjects that affect so many of the voiceless in this world. Keep speaking out and making a difference. In this crazy political season we are in, you are a voice of reason and sanity and compassion.
PAN (NC)
The entire population on the planet - man and woman - and throughout all of history has a women to thank and respect for bearing them, giving them birth and nurturing them as children. It is atrocious how many in one half of the sexual equation, that has it easiest, mistreats and abuses the one who has the greatest challenge and does the most for both sexes.
Shantanu (Washington DC.)
Thank for highlighting this. It was a similar column from you several years ago that made me aware of this condition. I have been donating to the Fistula Foundation ever since.

https://www.fistulafoundation.org/

Cheers!
Jim (Ft. Lauderdale)
As a 58 year old educated person who's always tried to be informed about the world, I am stunned after reading this article. I've never heard of this, and feel horrible about it (about this terrible affliction and my own ignorance of it). Once again NYT, thanks for opening my eyes.
ST (New Haven, CT)
Vesico-rectal-vaginal fistula results from pregnancy. If pregnancy is monitored, it may be avoided.

Pregnancy is historically, and in reality, a life threatening state for the living breathing, mother, induced in an instant, planned or unplanned, its ultimate outcome uncertain.

Today, in the United States, and in current election campaigns, the availability of contraception and/or abortion are opposed politically on religious grounds.

The notion of the"free exercise" of a religion of any type, should not, and cannot, be permitted to mean its universalization, in any respect, and its involuntary imposition upon others of any different persuasion or variation whatever.

Whoever advocates the imposition of any universal, and specifically religious, "values," via government-enforced political means, must be disqualified, on that basis alone, from seeking any office.

This includes any candidate for any office anywhere.

Arthur Taub, MD PhD
Regina M Valdez (New York City)
Nicholas, I commend you, as always, for your unfailing and unflinching portrayal of the suppressed, oppressed and dispossessed around the world. As things stand, you speak largely for women and children, because it is these groups, humanity's most vulnerable, that are most exploited. Who are they exploited by? Men. Why are they exploited? Because. . . it's fun? easy? enjoyable? a right? It cuts too close to home, and is overwhelming and unbearable.

Though I can't fully read most of your articles, I read the little that I can, and appreciate you and what you do. You represent a minuscule minority: men who care about women and children, beyond what they can get from them, and not only care, but work to improve their lives. If only 1% of men could emulate your care and compassion, the world would be a much better place, for women, for children, for all of humanity. Thank you.
Cy (Texas)
This is a heart-rending and important story, especially in an age when so many dismiss childbearing as if it were carrying a doll around in your pocked for nine months.
Sophie Mongalvy Obumselu (Lagos)
It is great Nicholas Kristof that you wrote this column. As you point out, it makes a difference when men talk about these "grim" and "morbid" issues too.
Jon (Boston)
For a great documentary on this problem, check out A Walk to Beautiful, A NOVA/PBS film (2008).
Stephanie Newby (CT)
Yet again I have reason to thank you, Nicholas Kristoff, for your work and for your support of women world wide. And to the New York Times for supporting you. Getting these stories out is essential. What we really need is data. Could the Gates Foundation, Global Fund for Women or some other such organization co-ordinate a global census on the state of women's health world-wide?
"In God we trust, all others bring data"
Paul (Long island)
As usual a very interesting and troubling column, but the chance of having men talk about here in America is probably zero. First, as you note, it's not a problem here. And second, the issue here is the unrelenting attempts by Republican conservatives to restrict women's access to abortion. I like to see if Hillary is up to raising this as an issue, but have my doubts here as well.
Mary (USA)
Why did your article not refer to FGM, the leading cause of fistula?
Sherri Davis (East Amherst, NY)
I realize the point of this article is to shine a light on women suffering from fistula due to poor pre-natal and obstetrical care around the world. But fistula are also a complication of crohns disease and colitis, and occur in both men and women.
pigenfrafyn (Boston)
NPR did a story about this a while back. I knew nothing about fistulas, had never heard the word, but the story about the suffering of these women brought me to tears.
Thank you Mr Kristof for shining a light on a topic foreign to most of us. The battle for equal rights and a life lived in dignity for everyone continues---right here in the US as well.
Martha (New York)
Mr. Kristof, in his analogy, perpetuates the view of leprosy as a disgusting, frightening disease. Leprosy has not been eradicated, and its victims shouldn't be conjured - "lepers"!! - in a discussion about the horror of fistulas.
Jack (<br/>)
Thank you for continuing to write not just about the realities of the world, but the efforts to improve it. It's all too easy to only cover the negative. By inspiring others to help you're making the world a better place.
Gustav IV (Roslyn, Pa)
Another touching and poignant article by Nick Kristof. He doesn't sit in an office in New York and take his subjects off the wire, he goes into the field and gets his hands dirty every day.
I'm just afraid that one day some maniac and fanatic will take up an AK 47 and end Nick's "meddling" into their sacred religious beliefs.
He will have a victory.
We will lose one of the great journalists and humanitarians of our time.
Patricia (Paris, France)
Thank you for this column. The Fistula Foundation is a great charity and donating even a small amount can go a long way to change a woman's life. Keep up your very important writing Mr. Kristof.
itsmildeyes (Philadelphia)
So, a lack of sexual/reproductive education, no knowledge of birth control, no institutionalized social safety structure for poor women, ostracization of affected women, religious endorsement of punishment/curse dogma.

Two thoughts:
1. Sounds like the Republican Party platform.
2. Ethiopia needs a Planned Parenthood presence.

(I do sincerely wish these suffering women and the fistula organizations mentioned well. My snark is certainly not directed at them.)
John Smith (Cherry Hill NJ)
TRAGIC Are the futures of women in Africa who are disenfranchised by lack of birth control, by lack of education and by lack of ownership of property. Add to that the humiliation women having fistulas resulting either from a childbirth or rape and lack of access to medical care. The social stigma of isolation because of the odors resulting from fistulas takes a further toll on the quality of women's lives. The act of writing down the obstacles women face in some African societies is overwhelming. Living with their burdens is unimaginable! Fortunately there are some medical people who offer their services to women requiring fistula repair surgery. Objectively, what is perceived to be male prerogatives in some African societies leaves not only the men but entire families impoverished. The awful truth is that men tend to keep the money they earn for themselves; But women tend to share their money with the family and to seek education for themselves and their children. I don't know how likely it is that such social changes will occur on a wide scale; But rather one family at a time.
sandyg (austin, texas)
'....Do not scorn her with words harsh and bitter
Do not laugh at her shame and downfall
For a moment just stop and consider
That a man was the cause of it all!'
D.A.Oh (Middle America)
A first obvious step would to be vote for Hillary over The Donald.
blackmamba (IL)
If men were capable of becoming pregnant and carrying a fetus to term to be delivered as infants to be nourished by male mammary glands, I fear that the human race would come to an end. There are all female vertebrate species. There are no all male vertebrate species.

Misogyny plus theology denies the humanity and equality of females. The faiths of Abraham-Jews, Christians and Muslims- are equally at fault. Neither the Hindus nor the Buddhists are any better. The y chromosome is some odd anomaly. The nations with the most Muslims-Indonesia, Pakistan, India and Bangladesh- are all nominal practical democracies who had or have female heads of state and/or government.
David Gifford (New Jersey)
I watched Americam Idol the other day and saw LaPortia Renae tell her difficult journey to self pride after being made to feel like dirt by her exhusband. I read this column and see how far women around the world have to go to get anywhere near equality and wonder how young woman in America can not see the importance of electing a female President. Too many people look only to the own situation and never see beyond their own little world. No man is going to bring equality to women. They are going to have to do it themselves and seize the reins of power. It cannot wait for another day for women like these.
Theresa Breazeale (Boston)
Thank you so much for highlighting this problem that devastates women's lives. It is huge, true, but many problems now solved were just as daunting. Is the Gates Foundation on this? Would you publish some organizations directly involved so one might make contributions?
de Rigueur (here today)
"No doubt this seems like a grim or morbid topic,"

Mr Kristof, thank you again for having the courage to highlight these "grim" topics, because behind them are real women and real suffering. Never stop, please.
gloria (<br/>)
Keep bringing these problems to our consciousness, Nicholas. I think the enlightened realize that when women have equal rights, the world will be a better place. A good start is getting women to have control of their own bodies, which means contraception availability to all. In this area, the Catholic Church and Islam are guilty of keeping control in the hands of men. Once women can decide when to become pregnant, if ever, they can advance. This is the biggest obstacle to freedom for women. The US has imposed the rule that any UN aid given to a needy country, (with US funds), must exclude contraceptive information. NGO's are excluded from this injunction, but generally, NGO's follow this rule. Paul, another poster said, it will take centuries for changes for women, but I'm more optimistic. The world, because of the rapidity to disseminate information, moves quickly now in terms of changes, and I think women are a part of the information revolution and will cause changes. I see that happening, when I look at the advances for women in the USA since my childhood, and those advances are major, from having a credit card to being able to enter any field of endeavor. We just need men and women like Kristof to advocate for the voiceless, and make us aware of the inequities we accept. Thank you, Nicholas
Bbrown (<br/>)
Nicholas, when I read your sentence about discussion on women's rights, I said, "What discussion?" The conservative right seems to want women in the US to go back to the 50's. There is no discussion, because they know what they want and are working hard to make it happen.

Maybe if US women are all barefoot and pregnant, we'll be less troublesome. I want us to be outspoken and lots of trouble.
Mary Siesky (Dunedin, Florida)
Mr. Kristof, you report that fistulas are no longer a problem in the west, thanks to c-sections. This is inaccurate and simplistic. Western women are just able to hide their symptoms more successfully. There are a number of highly skilled surgeons right here in the United States who treat women with fistulas all the time. ( and unskilled surgeons who try to treat the problem, only to have women return again and again after failed procedures.) Moreover, poorly handled deliveries, with excessive or careless use of drugs like pitocin, put mothers at risk for birth injuries. Older women who routinely had episiotomies with the birth of each child often develop fistulas later in life because the muscles have been weakened. Fistulas are not just a third world problem, and while c-sections can be life saving, to suggest that they are the answer to this horrendous problem is to encourage over-eager intervention, the root of many current obstetrical problems. Universally, we need better prenatal care and highly qualified birth attendants who have a variety of natural and medical techniques to assist mothers. Most of the current enrollees in US obstetrics programs have never even witnessed a birth without some medical intervention--pitocin, epidurals, episiotomies, c-sections, are routine. Proper intervention in a problem birth can save the life of mother and baby, but intervention and "management" have become so routine that more injuries such as fistulas are on the rise.
Mike Moskalski (NJ)
I'm pretty confident that Nick is aware of most of your point. My assumption is that his point is that people with this affliction in the west don't spend years on a piece of plastic hoping to die.
AmyR (<br/>)
$750 given to the Fistula Foundation https://www.fistulafoundation.org will repair a woman's fistula and give her her life back. It's a great organization -rated 4-Star by Charity Navigator - and you can save a woman's life for $750.
Joe (Jerusalem)
The term 'lepra' to describe anything is a term that should be and has been for banned for decades from the world of journalism, as it describes a human condition filled with stigma. The correct term is Hansen's disease which affects ca qtr million of people in the world today and is treatable with correct medical attention. The stigma today is such that many countries have closed hospitals dealing with the condition due to the harsh and unfair stigma associated with the disease. I might add that 95% of the world's population has a natural immunity to the disease. Next time, it would be better to use the correct term Hansen's disease or ignore the use of the term altogether.
Sophia (chicago)
Thank you for your fine work Mr. Kristoff, and for bringing these important issues to our attention.
Janna (Alaska)
Being born female is the most dangerous thing in the world. Domestic violence, male control, political, patriarchal, and religious limitations on contraception and other women's health care needs, limited or illegal abortions, job discrimination, the medical dangers of unwanted, female genital mutilation, unsupervised, underage, and too frequent pregnancies, rape as a weapon of war, prostitution forced or due to no other options, costly or unavailable menstrual products, competition for male support, sex selection in pregnancy...it's a wonder how many of us get out alive!
Larry Lundgren (Sweden)
Nicholas Kristof, you are at your very best when you turn your attention to the mothers to be in the Horn of Africa countries - and elsewhere. You made an important change in my life about 5 years ago when you put forth the idea that we who have everything might turn our gift giving to supporting people like Edna Adan in Hargeisa (www.ednahospital.org) and Hawa Abdi in Mogadishu (www.dhaf.org).

From that day on they became central in my gift giving and the basis for writing countless NYtcomments based on my friendships with remarkable women with first names like Shukri, Fatima, Iman, Naiima, Elham, and Ahlam all with roots in the Horn but now spread throughout the world, all with the goal of helping their less fortunate sisters.

So today I will contribute to Edna and Hawa and do so in the name of two remarkable members of the Somali walaalo, Shukri in Uganda and Fatima in Minnesota. Then on Tuesday at the Red Cross I will ask any Somali-born present - who are Edna Adan and Hawa Abdi - and I can be sure they will know.

So readers, listen to Nicholas, then act.

Only-NeverInSweden.blogspot.com
Dual citizen-USA-SE
Wordsmith (Buenos Aires)
The most remarkable miracle of humanity is that in the face of gargantuan odds, individuals still have hope. That some care is, true enough, not enough. But that they care makes a difference, however small, that may eventually embrace a larger slice of the world than is now included.

The majority of humanity is bound by the razor wire of aggression and religion. That a few control the majority scars all nations. Whether slow or cataclysmic, humanities only hope is change for the good. Women, ethnic peoples, the uneducated, the disadvantaged in any way will suffer so long as mankind continues on its present path. It remains to be seen if change is possible. But it is only through voices--such an article as this one--that word gets out to more people. It is only through the benevolent few in government and the defiance of those who do not suffer silently that meaningful change appears.

I am frustrated. Although I do respond emotionally and empathetically to such stories as this, I don't know what to do to help. Part of mankind's suffering is is not being in the right place and not having the wherewithal and to go there to help. All I can do is say thank you to those who do.
Cassowary (Earthling)
I applaud you for writing this column about a very important but overlooked women's health issue. I fear the plight of women has worsened in many parts of the world due to war, crime and the regression to more brutal interpretations of Islam. Too often those in the West choose to ignore the horrific suffering of women for fear of offending the men of other nations, cultures or religions.
Brian S (Las Vegas, NV)
I consider myself to be a well read and a fairly well informed person, but never knew this was such a problem. I am grateful to the NYTimes and Mr Kristof for bringing it to light.
Said Ordaz (New York, NY)
I was reading this very interesting and educational piece, when I came to the real point of the story:

'To her credit, Hillary Clinton did spotlight global women’s issues when she was secretary of state'

And there it is. We left off the plight of these ladies, to praise Clinton.

This is now just another pro-Clinton advertisement, courtesy of The New York Times.

What a sham you have become.
Mike Moskalski (NJ)
Really, one sentence in this article throws you off, just because you disagree politically. Your comment illustrates the point that I see in this column, Americans spend way to much time looking in the mirror and not enough time considering others. Please offer an example of a politician you support doing something positive for women in general or more importantly to this specific problem.
Daniel Katz (Westport CT)
That there are only 4 comments on this article at this juncture is testament to the fact that 1) "womens' problems" are unimportant and 2) that phony puritanical inhibitions keep the discussion of bodily function at bay.
zelda (Geneva)
Thank you for this moving article about an extremely important problem, which underscores how lacking the world is in ensuring women the most basic right of all - the ability to control their bodies and to determine when and by whom they become pregnant.

Ready access to cheap, safe and effective birth control is so vital for all women, and would be a very simple step to addressing so many problems facing the human race -- first and foremost, overpopulation. By allowing girls to achieve an equal level of education to their brothers, they can better provide for themselves and their families, thereby raising the overall standard of living in their communities. This in turn will empower them to take on more leadership roles which can only be a positive force, since women are far more likely to work towards consensus and peace in solving problems than are (as history has shown and continues to show) men. Violence and war is overwhelmingly a male response to human conflicts.

Even in this country, where the topic of abortion triggers such hateful and vitriolic debate, the solution to avoid the vast majority of abortions -- contraception -- is amazingly absent from the conversation.

Contraception is key.
Katherine (New York)
Every man in this earth was brought here by a woman who risked her very life to do so. Each one lived of the breathe in their mothers' lungs and the blood in her veins. And yet, on the whole, women are treated as less than truly human. Denied the basic human rights that should be theirs by birthright--by recognition of their humanity.

I pray that the day will come when womankind will rise up and choke to death the suffocating and murderous python that is the global patriarchy. The day cannot come soon enough.
redmist (suffern,ny)
A tough subject but thank you for the education and awareness. I will contribute to the cause in a small way.
No one should have to endure this.
sciencelady (parma, ohio)
Nick, way to draw attention to humanitarian causes.
Shine the light.
Jenz (MA)
Contraception, access to the full range of healthcare, education, and basic human rights are every woman's birthright.
BUBBA (SOUTH CAROLINA)
A "good" story for us Christians to take into Palm Sunday and act on. It is a huge problem but doable. There are plenty of Muslims and Christians whose interpretations of their respective theologies mandate action on this-who find it a moral obligation. To ignore it is to ignore the most basic tenants of those teachings.
Lynn Ochberg (<br/>)
Women as disposable chattel is still my gender's predominant status worldwide. The Republican defunding of Planned Parenthood and legislative reduction of the number of clinics serving women's needs are the current manifestations of this damnable reality in the USA. Those of us who have access to medical help are the very lucky few.
Sheila Ryan Hara (Itoshima Japan)
I have admired your work for years, Mr. Kristof, and this article is one example why: you give voice to the voiceless and educate those of us lucky enough to determine our own futures as to what life is like for those who can not. People like Jamila and Marima would never have suffered such terrible consequences if THEY had been in control of their reproductive health, namely contraception and safe child birth practices. What is the US (and the UN) doing to help (or harm) the girls and women who have no where else to turn but NPO hospitals?
Rick Foulkes MD (Chicago)
The IUD has emerged as the safest and cheapest method to control a women's reproductive choice.
For a few dollars these can be placed by a trained health care worker. There maintence requires a return in 3-5 years for exchange or removal when the women chooses to become pregnant.
In terms of morbidly, like this example, mortality, where early childbirth represents the leading cause of death in young women in impoverished areas, few investments can match the cost to benefit of making IUD's easily and inexoensivly available.
In terms of the advancement of women control over reproductive timing may be the single greatest gift we can give.
Liz (Albany, CA)
Thank you for letting us know about this problem. I was not aware of it. How truly dreadful.
And Justice For All (San Francisco)
There needs to be much more money, from both governments and charities, devoted to improving the lot of women. It's just so unfair how women are treated.
Nancy (Vancouver)
Mr. Kristof, this is neither a grim nor a morbid topic. It is a reality for hundreds of thousands of women, and deserves to be addressed as much as any other serious health issue. However, thank you for writing about it, you are one of the very few who has dared.

I don't think any man can imagine what it would be like for a woman to live with either a bowel or a bladder fistula, let alone both. I am a woman, and can't imagine the pain and humiliation. The pain and disability from pelvic nerve damage that precludes even walking, let alone the social isolation and economic hardship these women experience.

This is preventable, as are so many things in this world, as the arms race escalates in every corner and uses up resources that might be better spent..... etc.

While Ms. Clinton has "..spotlight(ed) global women’s issues when she was secretary of state", has anyone asked her how she reconciles this really vile reality with the donations the Clinton Foundation has received from warrior states?

http://www.huffingtonpost.com/dieter-holger/hillary-clinton-is-pro-gu_b_...

Not to single out Ms. Clinton, I don't remember any politician anywhere stating that the rate of fistula and the absence of preventative measures for it, or the absence of treatment for it as even a blip on their screens.

Maybe because it is something that is just another yucky thing about women, especially 'those' women. I can't imagine what Donald Trump's reaction would be to this reality.
M Clement Hall (Guelph Ontario Canada)
When I was a visiting surgeon teaching in Ethiopia many years ago (at the time the country was communist) I was told about a missionary surgeon who perforce specialised in fistula repair, and who had used his illiterate cleaning woman as his surgical assistant. As time went by and he aged she, very successfully, took over this complicated operation.
Alicia Blair (Fairifeld, CT)
Mr. Kristof, you are a champion of women's rights and I admire you for this. Thank you being brave and bringing this issue to light and educating us. We can each make a positive difference in the lives of others, start by volunteering in your own community.
Carolyn Lehman (Arcata, CA)
Just want you to know that your book Half The Sky inspired me to take several actions. Every year my husband and I donate to the Fistula Foundation at least enough to pay for one woman's surgery. In the scope of world suffering, it isn't much. But for the women who need it, it's their whole world. And I like to think there is a woman somewhere who is reclaiming her place in her society, maybe even stepping beyond it, because she is finally fistula free.
Thank you for inviting me to step outside of my comfortable life and showing me how to make a big difference for someone else.
C. Hess (Silver Spring, Md.)
How about it, candidates? And how about it, media beyond Mr. Kristof? Rather than worrying about delegates and other horse-race non-issues, what can be done to improve women's lives at home and abroad? Mr. K, thank you for reminding us of important things that we are often blissfully unaware of...but a "what you can do" suggestion would sure be welcome here. Is there a group more enlightened than Hamlin, which as "Gordon in Seattle" says does not give out birth control, that people could make donations to?
B.Murphy-Bridge (Canada)
Child Brides. Children giving birth to children. Having a religion like Islam that sanctifies sex with children because the Prophet married a 6 year old and had intercourse with her at age 9 or 10 certainly doesn't help.
Jenifer Wolf (New York)
Hey Nicholas, I see you're back to sniffing female genitals (metaphorically speaking) for a living. It makes me nauseous. I wish you would allow women to deal with these issues.
bigsister (NYC)
When Trump - cowardly straw lion that he is -finally gets the hook, rest assured his exit will be accompanied by major fireworks. He won't be taking it lightly.
Onbeyondzen (Berkeley)
Failure to communicate frankly and honestly is something that will destroy the human race if we do not muster the humanity to confront the issues we feel compelled to hide because of embarrassment, taboo, superstition, and just plain stupidity.
A G (Western NY)
And here's where a traditional Catholic will jump in to scold the author for suggesting that contraception be supplied to any woman--even though over 90% of American Catholic women have us contraception. In the case of preventing fistulas, protecting women likely to be exposed to the Zika virus, helping couples in poverty prevent unwanted pregnancies, or reducing the number of abortions needed, contraceptives are far and away the easiest, least expensive, and most readily available preventative.
Alan Grinberg (Pacifica, CA)
The Fistula Foundation, a very highly rated charity.

https://www.fistulafoundation.org

Maybe not the world's answer, but every recovered woman counts.
SK (Brunswick, ME)
After reading this article, I am left with one major question - how can we help? Donations, raising awareness, etc.? Please let us concerned readers know!!
Megan Taylor (Portland, OR)
Thank you, Mr. Kristof. You open my eyes and sometimes break my heart whenever I read your columns.
JSH (Yakima)
Although this article presents fistulas as a third world problem, they exist in the U.S.

During my South Central Texas Internal Medicine Residency, I diagnosed a 17 year old who had vaginally "pooped" for 2 years.

She had delivered in another large city where 3rd year Medical students, who had gone through their OB/GYN clinicals, could moonlight catching babies. She likely had a vaginal tear during her delivery that had been missed. Although, I did not have access to the records from the other system, she told me that when she subsequently voiced her problem, it was dismissed several times. I believed her.
J.O'Kelly (North Carolina)
To the Editors: Is this the only photograph available to illustrate the misery of millions of women with fistulas. The woman's face showing and her legs spread. I am dumbfounded.
Tim Browne (Chicago)
Managed to sneak in a subtle Hillary Clinton plug there at the end. Nice job :)
Barbara Claire (Costa Mesa, CA)
Nicholas,
I just have to express my gratitude for the way in which you write with such conviction and compassion about the important stories, ones that are not easy subjects. This story, (on women with fistulas) is a perfect example of how your moral compass is helping others (speaking for myself) to direct our care and attention to those who need it. Thank you for your work!
Carol (Bellingham, WA)
I would urge all your readers to watch A Walk To Beautiful, available through Netflix. It is the true story of women in Ethiopia who have developed fistulas, and must make their way or "walk' to Addis Ababa to the hospital where fistula surgery is performed.
I first heard about the Fistula Foundation through a column written by Mr. Kristof several years ago. For $37.50 a month, over a year one can provide fistula surgery for a woman in Africa.
Eric (Portland)
Thanks for sharing this, NYT. I read the paper every day, but have never heard of fistulas in print or in my day-to-day life. A terrible situation.
Me (In The Air)
Terribly sad. Hell exists on earth for millions.....
mysa (ohio)
So well said. I wish there was more I could do.
Austin (California)
Thank you for another eye opening piece Nick!
Floramac (<br/>)
For some reason I can't leave a comment without using reply.

I could barely bear to read this, but I'm so glad to see this very important issue getting some coverage. I would really like to see more concerted effort on lifting up the lives of women worldwide. Girls can't go to school because they lack menstrual supplies; no access to pre-natal care or medical help with giving birth, as well as rape, leads to fistulas; and I have a student from Somalia who was sewn up so completely after she was "cut" that she can barely pass menstrual blood and consequently misses many days of class because of horrific cramping. And then women are abandoned by their husbands, shunned for "stinking" or forced to isolate themselves at home. Women are mutilated and punished just for being women.
Ray Gibbs (Chevy Chase, MD.)
life giving/saving - thanks connections/sharing - being there.
Gail V (Silver Spring MD)
I am so glad you are bringing important issues like this to light for Americans. Thank you.
Raven (Texas)
Kristof, you are as much social worker as you are journalist. You do great work, unlike any other. Very enlightening article, as are all of yours. Keep pluggin'.
Barbara Furlow (Indianapolis, Indiana)
Once again Kristof highlights a problem too long ignored. Women everywhere. unite to help rid the world of this 'silent' crisis.
terri (USA)
Men too! Do not men care about this issue/
BC (greensboro VT)
I think if the men in those countries had cared about this issue, there wouldn't have been an issue.
Steve C (Bowie, MD)
The many examples of this disregard for women is appalling and despite the medical advantages American women enjoy, the refusal by many (especially Republican candidates) to accept and better Women's Rights leaves millions of women with no place to turn. It is way beyond human rights and it has no business being a political issue.
Laura (Florida)
I agree that it has no business being a political issue, and so I am puzzled by your bringing in Republican candidates here. Can you connect the dots?
Hekate (Vancouver, WA)
Thank you for this profoundly heartbreaking column AND for listing organizations I can donate to help alleviate the problem. What a world of horrifying contrasts we live in. I, no better a person than the women you wrote about, have access to excellent healthcare. So many others, at least as deserving as I am, have to endure so much.
MA (NYC)
"To her credit, Hillary Clinton did spotlight global women’s issues when she was secretary of state, and Michelle Obama has been promoting girls’ education globally, but this global gender gap hasn’t received attention in this presidential campaign. And frankly, it doesn’t work if it’s only women talking about it; men have to be involved as well."

It is good that Hillary Clinton,Michelle Obama, Carolyn Maloney and other women have addressed this issue of fistula and other global ones that concern girls and women, but it is equally sad that more notable male leaders are less involved.

Thank you, Nicholas Kristof, for writing about it and including photos. It breaks my heart that so many girls and women suffer when there is so much wealth that could be used to help them. Imagine here in NYC, the Waldorf Astoria Hotel, where world leaders stay, is located on the site that was once a fistula hospital.
Paul (Shelton, WA)
Nicholas: The problem is so huge it will take many centuries to truly solve. A 1.2 billion person religion (Islam) will have to make major theocratic changes as will a major element of Christianity (Catholic). I fear we will only be able to make changes around the edges. Nothing much has changed for women in Islam in over 14 centuries. No enlightenment there. And the West has further to go, too. Then there is a Far East, most especially China, Korea and Japan. Gender issues are world wide. You are calling for the highly improbable, I am afraid.
uwteacher (colorado)
All you say is true. that does not mean that we should do nothing. Even 1% of something is better than 100% of nothing.
Dude (New York)
This is nonsense. Fistula is a matter of health care and economics, not religion. In developed nations with plenty of religion, it is not a problem. Stop this kind of obstructionist talk that is simply wrong.
Larry Lundgren (Sweden)
@ Paul - you end with a sentence that sounds much like what the Times has steadily provided us concerning Bernie Sanders, change is improbable or impossible.

In my just submitted comment (02:00 AM EDT, 07:00 CET) I point to two Somali women (Nurse Edna Adan, Dr. Hawa Abdi) who did not see change as impossible. Why not support them.

The problems faced by, for example, mothers to be in the Horn of Africa arise first and foremost from the lack of access to medical care, not because of their religions. Even any problems related to FGM arise not because of religion but because of cultures that deemed FGM to be necessary. Recently, believe it or not, you could read in the New York Times or hear on BBC World an American female physician saying that a lesser form of FGM should be available in the US (reasons complicated).
Only-NeverInSweden.blogspot.com
Dual citizen-USA-SE
Charles (Holden MA)
I believe that women are oppressed all over the world, and it isn't getting anywhere near enough attention. It's still a man's world, even here in the good old U. S. of A. Just look at our leading Democratic presidential contender, and listen to the puerile, vile epithets thrown at her from both sides of the aisle. This story is a grim reminder of the horror of being female in a third world country. Talk it up. We need more articles about this issue.
Larry Lundgren (Sweden)
@ Charles - Yes Charles, we do need more articles but also more support. See my first comment submission when and if it appears in which I note that Kristof changed my life by leading me to this subject in 2011.

And, since you write from county to which my Swedish forebears came and the state in which I grew up (Seekonk MA) I will point to African Women's Health Center founded by Nawal M. Nour, MD, MPH at Brigham and Womens' Hospital as one place that helps Horn of Africa women who have landed in New England, for example the Somali Bantu in Burlington and Winooski, VT.

Only-NeverInSweden.blogspot.com
Dual citizen-USA SE
CL (NYC)
My objections with Hillary Clinton have nothing to do with gender. I did not vote for her in 2008, and I like her even less this year, although I might not much of a choice. Apparently many women did not as well.
Chris Brady (Madison, WI)
No objection to your premise that women are oppressed all over the world. However, that you support this premise by reference to incivilities in the presidential election is, to me, a part of the problem. Politics is a dirty business, and the men are also targets of the mudslinging. But you're referring to an election that a woman is very competitive in in a civilization light years beyond many parts of the world where women's situations are truly deplorable. The argument can and should be supported primarily on those grounds, but frequently isn't.

This was a tendency I saw a lot of in academia several years ago, where many concerns of the women's rights movement had retrenched to silly debates about whether we should be spelling as womyn, or referring to manhole covers as personhole covers as a statement against androcentrist domination. And across academia criticisms of the dominant strains in other cultures that still allow for modern-day slavery of women became too taboo to call out, except insofar as we could pin it all on some Western policy that was responsible for it all. This seeps into contemporary immigration debates about whether we can expect better treatment of women in immigrant communities.

This is not to say that there aren't local concerns in the West, but it isn't all about us. We've come a long way. We can refine our progress while still being very muscular about demanding the rest of the world come a lot farther than where they are.
Gordon in Seattle (Seattle Wa)
I am convinced that Fistula can be prevented by using portable, battery operated ultrasound. By measuring the pelvis and fetal head it is possible with a 3 minute non invasive scan to identify those women at greatest risk of obstructed labor leading to fistula. Assuring that these women have access to a Caesarian section can prevent all the consequences.
The Hamlin hospital is also a problem. They do repair fistula and that is good but they not give contraception to the recovering women.
oldie (MA)
In a perfect world all pregnant women would have access to good medical care - including an ultrasound to measure the pelvis and fetal head. The problem is that too many women lack access to any maternity care never mind an ultrasound. Some of these women suffer in labor unaided for days - without medical care.
bnc (Lowell, Ma)
All well and good, but these women don't have hospitals - or even clinics - to attend to their deliveries.
Mark (<br/>)
The women being referred to are many of the same women who suffer from "female circumcision", amongst other ghastly, medieval, horrors that are, unfortunately, not only allowed to exist but are considered "Gods will" by the backward and willfully ignorant people in far too many parts of the world. Portable ultrasound would be absolutely unthinkable by many of these people and their "governments".